WebAug 29, 2024 · The FSHD Society announces that it has signed a memorandum of understanding to enter into a 3-year agreement to enable the expansion of the international facioscapulohumeral muscular dystrophy (FSHD) Clinical Trial Research Network (CTRN). FSHD is a hereditary muscle-damaging condition that affects an estimated one … WebThe Facioscapulohumeral Muscular Dystrophy Clinical Trial Research Network (FSHD CTRN) is a consortium of fifteen academic research centers (12 in the United States, …
Clinical Trial Research Network (CTRN) – FSHD
WebHe has worked with collaborators to develop new disease-relevant outcome measures to assess patient-reported disease burden, functional impairment, and physiological changes in muscle. He is the co-PI for the FSHD Clinical Trial Research Network which is comprised of 15 institutions in the United States and European Union. Publications Web*The FSHD CTRN is supported from a grant from the FSH Society (FSHS-52016-01), MDA Clinical Research Network Grant (573783) and Private Philanthropy. What is the FSHD TRN? The FSHD TRN is comprised of 8 academic centers across the United States with a large number of grants for independent research
List of FSHD Clinical Trials FSHD Society
WebJan 17, 2024 · The 2024 FSHD International Research Congress, held virtually on June 24–25, convened over 350 researchers and clinicians to share the most recent advances in the understanding of the disease mechanism, discuss the proliferation of interventional strategies and refinement of clinical outcome measures, including results from the … WebHe is also the founder along with Dr. Tawil of the FSHD Clinical Network (FSHD CTRN) built to facilitate the conduct of clinical trials in FSHD. The FSHD CTRN currently has 18 sites, 12 in the United States and six in Europe. You can reach Dr. Statland at: [email protected] WebNov 19, 2024 · The primary goal of this proposal is to collect motor and functional outcomes specific to FSHD over time. By collecting measures specific to FSHD, this will help … grants for indigenous corporations